
Fact Sheet Number 301
REPORTING HIV INFECTIONS
- WHY IS HIV INFECTION REPORTED?
- WHO SHOULD REPORT HIV CASES?
- HOW DO I REPORT AN HIV CASE? WHAT
ABOUT DUPLICATE REPORTS?
- IS AIDS STILL REPORTABLE?
- WILL THERE STILL BE ANONYMOUS HIV
TESTING?
- IS THE DATABASE SECURE?
- HOW IS THE INFORMATION USED?
- WHAT ARE PATIENTS’ CONCERNS?
- WHY NOT USE UNIQUE IDENTIFIERS?
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REPORTED?
Although a diagnosis of AIDS has been reportable to the New Mexico
Department of Health, Office of Epidemiology (OE) since 1981,
HIV infection first became reportable as of January 15, 1998.
With improved treatments, many people with HIV were not progressing
to AIDS and were not being counted. By recording HIV infections,
we have a better count of people affected. This information can
be used to focus prevention programs and to justify and allocate
funds for appropriate HIV services.
HIV CASES?
Any medical provider, laboratory, or organization that offers
HIV testing by name or provides care to HIV-positive patients
must report positive cases to the OE in Albuquerque. A positive
case means a confirmed HIV antibody test, and/or any test or condition
indicative of HIV infection (including a viral load test showing
undetectable results).
Infection control nurses generally report HIV+ patients admitted
to hospitals. Case managers and others should also report cases
to the OE. All medical providers who see patients with HIV should
designate a staff person responsible for reporting cases to the
OE. Children born to HIV-infected mothers are reportable whether
the child’s HIV status is known or not.
AN HIV CASE? WHAT ABOUT DUPLICATE REPORTS?
Case report forms, including pediatric forms for newborns and
children under age 13, are available from the OE. You may mail
completed forms to the OE, or report by calling Joanne Keefe at
(505) 841-5894. Those outside of Albuquerque can call the OE’s
toll-free number: 888-878-8992.
Report ALL cases, even if the patient has been seen by other
doctors or was diagnosed or treated in another state. Don’t assume
a patient has already been reported. The OE will collect information
on each case and will follow up to make sure patients aren’t double-reported.
If you have many cases to report, the OE staff can do a medical
record review in your office and complete the report forms.
REPORTABLE?
Yes, all AIDS diagnoses are still reportable. The OE will still
collect and present data on AIDS in order to maintain consistency
in its data and continue looking at trends in the state. Keeping
AIDS data will allow the OE to monitor access to HIV care and
the full spectrum of HIV disease. Providers should continually
update the OE on the status of patients, including AIDS defining
conditions, deaths, and moves out of state.
BE ANONYMOUS HIV TESTING?
Yes. Anonymous testing is important for prevention efforts and
will not make it more difficult to track the HIV epidemic. Anonymous
testing will continue to be available at Public Health counseling
and testing sites. This should encourage more people to learn
their HIV status, and if infected, to seek early treatment. Call
your local public health office or the New Mexico AIDS Hotline
at 800-545-2437 to locate an anonymous test site.
SECURE?
All state HIV surveillance programs are required to meet security
standards set by the Centers for Disease Control (CDC). Only three
staff members in the Office of Epidemiology have access to the
HIV/AIDS database. All employees sign a confidentiality statement
(with criminal penalties for breaches).
The database is stored in a scrambled code. Security measures
protect the room and the building where the database is kept.
No information that could identify any individual is ever sent
to the CDC or to anyone else except the medical provider who reported
the case. A variety of strict state and federal laws protect the
privacy of all HIV-related information.
The OE offers technical assistance to any medical office or
organization that wants to review and improve the security of
its medical data.
USED?
Data on HIV infections are now included in the OE’s monthly, biannual,
and annual reports of New Mexico HIV/AIDS statistics. You can
receive these by mail or read them on the web at: https://www.aidsinfonet.org/epi/epihome.html
The information is used to monitor the epidemic, to plan and design
HIV services and prevention programs, and to allocate resources.
The OE also provides custom data analysis for specific regions
or populations, trainings on the data, and graphic presentation
materials.
CONCERNS?
Many people with HIV are unaware of the national system of disease
reporting. Some think that “being reported” is new,
and only occurs with HIV disease. It is important to discuss the
confidentiality of health data and the importance of tracking
epidemics in order to prevent new cases and provide services for
those affected. Accurate information is needed to justify the
funding for disease prevention and services.
Patient names will not be released to insurance companies,
employers, law enforcement agencies or anywhere else outside of
the New Mexico Department of Health. People living with HIV are
protected against discrimination under the American Disabilities
Act. Call the OE if you need assistance in talking to patients
about HIV reporting.
IDENTIFIERS?
The CDC evaluated unique identifier (UI)-based surveillance systems
that did not include patient names. The study revealed several
problems with UI systems, including incomplete reporting, reports
with missing information, difficulty in conducting follow-up on
specific cases, and the absence of behavioral risk data. Medical
providers find UI systems difficult to use, and it is more difficult
to follow patients and assure that they get appropriate care.
Because many people have to code and decode data, UI systems can
be difficult to keep confidential.
You can reach the Office of Epidemiology in Albuquerque at
(505) 841-5891 or in Santa Fe at (505) 827-0006.
Revised October 30, 2002
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New Mexico AIDS Education and Training Center
and the New Mexico Department of Health