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 New Mexico AIDS InfoNet

Fact Sheet Number 301

REPORTING HIV INFECTIONS

Eslabón a la Versión Español


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WHY IS HIV INFECTION

REPORTED?

Although a diagnosis of AIDS has been reportable to the New Mexico

Department of Health, Office of Epidemiology (OE) since 1981,

HIV infection first became reportable as of January 15, 1998.

With improved treatments, many people with HIV were not progressing

to AIDS and were not being counted. By recording HIV infections,

we have a better count of people affected. This information can

be used to focus prevention programs and to justify and allocate

funds for appropriate HIV services.


WHO SHOULD REPORT

HIV CASES?

Any medical provider, laboratory, or organization that offers

HIV testing by name or provides care to HIV-positive patients

must report positive cases to the OE in Albuquerque. A positive

case means a confirmed HIV antibody test, and/or any test or condition

indicative of HIV infection (including a viral load test showing

undetectable results).

Infection control nurses generally report HIV+ patients admitted

to hospitals. Case managers and others should also report cases

to the OE. All medical providers who see patients with HIV should

designate a staff person responsible for reporting cases to the

OE. Children born to HIV-infected mothers are reportable whether

the child’s HIV status is known or not.


HOW DO I REPORT

AN HIV CASE? WHAT ABOUT DUPLICATE REPORTS?

Case report forms, including pediatric forms for newborns and

children under age 13, are available from the OE. You may mail

completed forms to the OE, or report by calling Joanne Keefe at

(505) 841-5894. Those outside of Albuquerque can call the OE’s

toll-free number: 888-878-8992.

Report ALL cases, even if the patient has been seen by other

doctors or was diagnosed or treated in another state. Don’t assume

a patient has already been reported. The OE will collect information

on each case and will follow up to make sure patients aren’t double-reported.

If you have many cases to report, the OE staff can do a medical

record review in your office and complete the report forms.


IS AIDS STILL

REPORTABLE?

Yes, all AIDS diagnoses are still reportable. The OE will still

collect and present data on AIDS in order to maintain consistency

in its data and continue looking at trends in the state. Keeping

AIDS data will allow the OE to monitor access to HIV care and

the full spectrum of HIV disease. Providers should continually

update the OE on the status of patients, including AIDS defining

conditions, deaths, and moves out of state.


WILL THERE STILL

BE ANONYMOUS HIV TESTING?

Yes. Anonymous testing is important for prevention efforts and

will not make it more difficult to track the HIV epidemic. Anonymous

testing will continue to be available at Public Health counseling

and testing sites. This should encourage more people to learn

their HIV status, and if infected, to seek early treatment. Call

your local public health office or the New Mexico AIDS Hotline

at 800-545-2437 to locate an anonymous test site.


IS THE DATABASE

SECURE?

All state HIV surveillance programs are required to meet security

standards set by the Centers for Disease Control (CDC). Only three

staff members in the Office of Epidemiology have access to the

HIV/AIDS database. All employees sign a confidentiality statement

(with criminal penalties for breaches).

The database is stored in a scrambled code. Security measures

protect the room and the building where the database is kept.

No information that could identify any individual is ever sent

to the CDC or to anyone else except the medical provider who reported

the case. A variety of strict state and federal laws protect the

privacy of all HIV-related information.

The OE offers technical assistance to any medical office or

organization that wants to review and improve the security of

its medical data.


HOW IS THE INFORMATION

USED?

Data on HIV infections are now included in the OE’s monthly, biannual,

and annual reports of New Mexico HIV/AIDS statistics. You can

receive these by mail or read them on the web at: https://www.aidsinfonet.org/epi/epihome.html

The information is used to monitor the epidemic, to plan and design

HIV services and prevention programs, and to allocate resources.

The OE also provides custom data analysis for specific regions

or populations, trainings on the data, and graphic presentation

materials.


WHAT ARE PATIENTS’

CONCERNS?

Many people with HIV are unaware of the national system of disease

reporting. Some think that “being reported” is new,

and only occurs with HIV disease. It is important to discuss the

confidentiality of health data and the importance of tracking

epidemics in order to prevent new cases and provide services for

those affected. Accurate information is needed to justify the

funding for disease prevention and services.

Patient names will not be released to insurance companies,

employers, law enforcement agencies or anywhere else outside of

the New Mexico Department of Health. People living with HIV are

protected against discrimination under the American Disabilities

Act. Call the OE if you need assistance in talking to patients

about HIV reporting.


WHY NOT USE UNIQUE

IDENTIFIERS?

The CDC evaluated unique identifier (UI)-based surveillance systems

that did not include patient names. The study revealed several

problems with UI systems, including incomplete reporting, reports

with missing information, difficulty in conducting follow-up on

specific cases, and the absence of behavioral risk data. Medical

providers find UI systems difficult to use, and it is more difficult

to follow patients and assure that they get appropriate care.

Because many people have to code and decode data, UI systems can

be difficult to keep confidential.

You can reach the Office of Epidemiology in Albuquerque at

(505) 841-5891 or in Santa Fe at (505) 827-0006.


Revised October 30, 2002

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